This book will:
Answer many of your questions surrounding pre-conception, pregnancy and post-birth
Help you understand the potential challenges in starting and raising a family alongside the management of your illness
Give you coping strategies to help you through these challenges
Assist you in feeling less alone on your path to parenthood
Encourage you to achieve your goals despite your health and the challenges it brings to your life
Topics covered include:
To parent or not to parent
Reducing or ceasing medication – the physical and psychological challenges
The post-birth flare
Breastfeeding (nursing) versus bottle feeding your baby
Caring for you and your relationships with others
Caring for your baby for the first 12 months
Preparing to do it all again
Available in paperback and e-book formats.
Arthritis, pregnancy and the path to parenthood, Vivid Publishing 2010
Foreword by Ainslie Cahill, CEO of Arthritis Australia
Recommended reading for General Practitioners by the Royal Australian College of General Practice
Read by health consumers, carers and health care professionals in 14 countries including:
“This book is a must read.....not only is it an inspiring and practical guide for men and women with a chronic illness and a desire to become parents, but it will help their families and friends understand what they are going through on a daily basis”
“Full of useful info and advice”
“It is written from the heart, opposed to the clinical medical publications which touch on the subject of arthritis”
“It made me realise how much I have blocked that part of my life and have never really dealt with the emotional side of it”
“Have finished book - BRILLIANT”
“It is so beautifully written and it moved me to tears. It is a book for all people because it has given me more insight into RA”
“I’m so pleased another mum has written a book about this battle faced by people like me”
“I've got an inflammatory arthritis and am close to going down the baby path. Your book is very timely!”
“I wanted to take the time to write to you and say a big thank you for writing such an inspirational, heartfelt book.
I tucked into bed at 8pm the other night, was in tears by page 23 and later turned the last page in what really was an amazing book. It was like someone had taken some of the fears and questions out of my head and written them down on paper. It's so easy for doctors to say, just go off your medication and get pregnant, but they have absolutely no idea how terrifying that prospect can be for someone with RA. The sheer length of time needed to go without meds make it's a very scary proposition. The uncertainty of not knowing what my health would be, let alone whether I would be well enough to look after a brand new life so dependent on my own.
My heart was breaking for you when I read of your diagnosis and the way it was handled. I can still remember the world tilting on it's axis 6 years ago when I too, alone in my doctors office was given the news (albeit in a nicer fashion) but to hear the way you were told made me so mad for you.
Reading your book and hearing of the experiences of you and other Mum's have made me realise that I had been putting off thinking about children for fear of going off my medication. To tell you the truth, I think that fear is probably bigger now, knowing that I might not have the elusive pregnancy remission so commonly spoken about, but I really believe that reading your book has helped me approach the whole thing with a different perspective. I can take action to put into place the tools and help that I will need embarking on such a huge journey. While I may not be ready for a year or so yet, I know I can spend that time focusing on improving my health and attitude so when the times comes, I will better prepared, both physically and emotionally.
I know this sounds dramatic, but I really believe sometimes in your life, there are things that make you draw a line in the sand so to speak, and there is before that time and after. I really feel like your book has made me draw a line in sand, and now I can go forward with a positive attitude regarding motherhood. I know it won't be easy, but I see the strength and determination of women such as yourself and those in your book and I know it can be done!
Thank you so much for sharing your experiences. I only hope you realise that your selflessness in sharing an emotional and private time in your life really has helped other women out there. You really have inspired me to take a more proactive approach to my illness and the possibility of one day becoming a mother too.
Thanks again, and I wish you and your family much health and happiness.”
(re-printed with permission)
“Your book is so honest. It is so comforting to know that I am not the only person feeling what I am feeling”
“I have read your book with a great deal of interest; it is so real and pertinent for women with young children or those contemplating pregnancy. ....It would certainly have been handy to have such a great resource at my fingertips”
“I really enjoyed reading your story, as well as the other's stories and knowing that I am not alone in my journey makes it all seem more bearable”
“I have only just gotten through Part One of your book, your story, and I cried within the first line! ”
“I received your book today, and I can’t begin to tell you how much your book has changed my life within 20 minutes!”
BJC Connected Care by Dr Irwin Lim, Rheumatologist (Australia)
Arthritis USA (in Spanish) - 'Advice and encouragement to cope with pregnancy and arthritis'
MamaMia (Australia) – 'Rheumatoid arthritis and motherhood: A life of uncertainty, fear and pain'
Bub Hub (Australia) – 'Pregnancy, parenting and rheumatoid arthritis'
Health Central (Canada) - 'Rheumatoid arthritis, pregnancy and parenthood: An interview with Suzie Edward May'
The Natural Therapy Training Centre (Ireland)
The Seated View Blog (Canada)
Getting Closer To Myself Blog (New York, USA)
Loving with Chronic Arthritis Blog (New York, USA)
Creaky Joints (USA)
Body and Soul (Australia) - 'I thought I was too young'
Curly Bones Blog
Interview with customer - https://www.youtube.com/watch?v=3iGnTduYW1Y&t=40s